At the moment Michelle is spending every night in the hospital, except those when Zoe is not allowed to eat (ie when she has a surgery scheduled) and I can therefore replace her. So long as she is nursing, she is tethered to the room pretty closely since Zoe is not willing to take a bottle or pacifier right now.
During the day she is in and out to try and spend time with Maya and stop by the office some days — yesterday they went on an Easter Egg Hunt. Maya has become quite the competitor since I took her last year, she came home with an overfull basket this time.
My parents have essentially put their lives on hold to move into our house and take care of Maya, and without that I honestly don’t know how we’d manage at all. We’re very lucky for that. Maya spends her time when not out with Mom or in the hospital play rooms visiting with them, and she’s having a pretty decent time of it. Being with grandparents is practically vacation anyway, so she’s getting by.
I tend to float between the hospital and home, filling in wherever I can. When Michelle is out, I’m with Zoe. When she is in the hospital in the evening I’m at home getting Maya through her bedtime rituals and night. It works pretty well, but it leaves little time for us all to be together. We had a picnic in the hospital room last night with all four of us, and it was the first time we’d managed to eat all together in weeks. We’re optimistic that if things continue to improve we’ll be out of the hospital until the BMT in a couple months, and things can return to normal right up until they are upended again.
The hospital staff has been very supportive, and we really don’t have anything but good things to say about them. We’ve met some truly standout people, including all of the doctors we’ve seen so far, so we couldn’t ask for better treatment. There are a lot of programs we’ve been informed about to help, everything from “bring in one bill” and they’ll pay it, to financial aid programs, to cafeteria meal cards to Wal-Mart and phone cards for getting gas or keeping in touch. They do a fine job of keeping the bases covered. I have a feeling we’re terribly lucky to be where we are with such great support from family and friends, a stellar hospital staff, and a really strong toddler who can handle being bounced around a bit and still be upbeat most of the time.
Side note: There was attempt by the spam filter to achieve sentience yesterday, suppressing all of the comments that came in for about 24 hours. My apologies for that, the rebellion has been put down and you may resume commenting. We love it and read it all, so thank you for that.