One thing we’ve come to understand about this disease from reading others’ stories is, you must be prepared for the ups and downs. It causes a lot of havok, and can generate swings in the body’s natural function.
We have been fairly lucky so far with Zoe, she has weathered it well all things considered. Here’s hoping that will continue.
Last week Zoe’s immune count marker (SEG Neutrophil) was up to 2.0 or 2000, this week it’s back down to .2, or 200. Not a good swing for us.
So this week we’re back in huddle mode, windows closed, no going outside for her to enjoy the beautiful weather until she has rebounded again. Dr. W felt it was likely due to the chemotherapy regimen, but we are wondering if she is not also struggling with her first pollen season.
In retrospect, it was probably a bad week to spend much time out, pollen in our region is still fairly heavy.
- WBC: 3.1 (5.0+ is normal)
- RBC: 2.83 (3.1+)
- Hemo: 8.6 (9.5+)
- SEG Neutrophil: .2 (1.0+)
- Platelets: 250 (150+)
Rolling with the punches here.
Hopefully next week will be back to where we were last. We’ll have more to report about the outlook for her Stem Cell Transplant soon.
Yup, flexibility is a key virtue in all of this. I imagine these ups and downs can create havoc in the parents’ systems as well.
Zoe looks like a Buddha-ess with her full cheeks and sweet smile. Did she have to have a spinal tap today or are those treatments over?? Love, Mara
No spinal tap, those are done for now until there is a reason for more. The recent ones all came back clear, to my knowledge only the first when she was first sick revealed any histiocytes.
Looking forward to seeing you on Sunday!!!
The ups and downs are really hard on everyone! Hang in there!!
Love you all,