The evening went well, Zoe slept very fitfully through the night. We saw a little bit of rash again this morning just as she was getting her Hydrocortisone pre-med, which may have been coincidence since Hydrocortisone usually treats rashes, not causes them.
We’re told Zoe is looking more and more like a “Poster-baby” for
Campath, her reactions so far are the mildest most of the staff have seen. I’ll take it.
Today is expected to go just the same as yesterday, no changes to treatment. If we finish out the week tomorrow without anything else eventful, we can breath a big sigh of relief for our first successful week.
- Creatinine: .2 (down from yesterday, which is good)
- Bilirubin: .3 (unchanged)
- AST: 78
- ALT: 36
- Sodium: 141
- WBC: 11.5
- RBC: 3.38
- Hemo: 10.2
- Platelets: 111 (down from the campath, we may hold her hydroyurea if they get too low)
- Lymphocytes: 0
Very quiet today so far. Our appointed mascot, Lucky the fish, highly approves.
Once again, we made it all the way to the end of the day before seeing any reactions. Zoe is having a bit of a flush this time, in what you might call an unusual pattern. Her entire left side of her face is red, with a line right down the middle where it ends.
A couple of NP’s came in to take a look, and they hadn’t seen a rash quite like this before. But, it doesn’t appear to be bothering Zoe much, she’s a little squirmy but vitals are fine.
This reaction is definitely curious. I promise we didn’t leave her in a tanning bed on one side too long, but that sure is what it looks like.
Still, one of the NP’s said he’d never seen such a happy Campath baby, so I guess all things considered we’re doing ok.
Late update: It’s called Harlequin Phenomenon, and we’re told it’s harmless.
What an amazing little fighter you have. She is going to do great through this whole thing. I think about you all everyday and pray that Zoe comes home a healthy and happy baby.
Zoe is such a little trooper!!
God bless her.
Well done, Zoe! You are a superstar. Mara