HLH

HLH Journal

It seems another year has gone by, this our first in a long time that hasn’t seemed completely overwhelming. The …

Summer is here, and it’s hard to believe so much time has passed since our last update. Sorry! As time …

Where have we been? Well thankfully, we’ve had little bad news to report, and for some reason remembering to report …

I’ve recently moved this site from its original home where it was part of my personal blog, to its own …

Fall is here, and everything around the house with two young girls is about pumpkins, cupcakes and costumes. The skeleton …

It’s been a roller coaster summer for us, but we’re feeling pretty confident going into Fall and School season. Zoe …

It seems like the nature of treatment that we are never able to quite get clear of things before we …

Where to begin? So much has happened in the past couple of months since my last update. First, an apology …

“Well, here we are. We’ve come a long way from where we were a year ago, having just learned that …

Zoe had her 6 months post-transplant studies recently, I wanted to offer some of those numbers for families who are …

What a year! Our life has been completely turned upside down by this disease this year, and I’m not sure …

These past few months we’ve found that it’s really too easy to lose sight of the reality of this disease …

Thanksgiving came and went in a flash this year. It seems like there is so much going on here, but …

We’ve now gone 30 days since Day +100, and things continue to slowly improve. Our last few visits have seen …

Today was Zoe’s 100 day post-transplant “work-up”, which means we shuffled through a long day at the Duke Children’s Hospital …

If you haven’t seen it yet, please check out the most recent update on Zoe — she’s had a big …

It’s been an incredibly long year. We’ve largely set aside our lives as we turned our focus to seeing our …

Today’s clinic visit brought interesting news, there was talk for the first time about a release date. Release at this …

As most of you know who have checked in with us at one time or another, Zoe has been on …

Zoe had a great day at clinic — or is having, I should say. We’re still here, getting the last …