chemo

Day +4: Mucositis

We’re fully into the Mucositis now, and while it’s painful to watch Zoe struggle with it, it is part of …

Day -1

Well, we made it through Thiotepa. Michelle deserves most of the credit, she had it rough last night with baths …

Day -2: Thiotepa Day

First off, I want to briefly say thank you to everyone who replied to my post yesterday, it was nice …

Day -4: Melphalan

Today is Zoe’s first of two doses of Melphalan, one of the more harsh medications that are part of her …

Day -6: Steady as She Goes

So far so good with Fludarabine. No reactions, she is taking it about the same as she would a hydration …

Day -9: Fludarabine Starts

Today we start Fludarabine, which is Zoe’s 2nd major chemotherapy medicine in the Reduced Intensity Conditioning (RIC) regimen. Fludarabine is …

Day -22: Starting Campath

We’re off and running now. Campath started today at 11:30am on a stepped dosing process, which means she gets an …

Those Difficult Thursdays

Thursdays are our clinic days, and in recent weeks Michelle has been going in by herself, feeling that there is …

HLH: A Simple Description

In order to properly discuss or write about some of the more complicated aspects of this disease, I feel I …

The Thursday Routine

Each thursday for awhile Zoe will be headed into the outpatient clinic to get her LP (spinal tap), her Etoposide …

First Outpatient Visit

We gathered our courage (and our baby) and made our way back into the hospital for our first clinic visit …

Taking our Medicine

Getting home from the hospital brings a whole new set of challenges, ones we honestly hadn’t quite anticipated, so anxious …

The Road Map

Last week we were provided with a document sometimes called The Road Map, which lays out the frequency and rough …

The Revenge of Diaper Rash

Having raised Maya to 2.5 now and changed who knows how many diapers, I’ve seen some diaper rash. What Zoe …

Surgery & Etoposide

Zoe starts the day with a NPO or not by mouth order that begins at midnight, so she will spend …

Dr. M’s Second Visit

Dr. M returned this evening  around 7pm to discuss our status, our next steps and his discussions now 24 hours …

Diagnosis

We learned that Zoe is likely to have HLH on Wednsday March 10th. The hematologist (Dr. M) who made the …