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Post-transplant Work-up

Today was Zoe’s 100 day post-transplant “work-up”, which means we shuffled through a long day at the Duke Children’s Hospital …

Day +100

It’s been an incredibly long year. We’ve largely set aside our lives as we turned our focus to seeing our …

Day +68: Changes Afoot

Zoe had a great day at clinic — or is having, I should say. We’re still here, getting the last …

Day +??

I was walking through the children’s clinic wing of the hospital a couple days ago with Maya on the way …

Day -12: Go Kidneys Go

Zoe had her 3rd GFR this morning, a follow-up on previous tests to determine kidney function. It involves injecting a …

Calm Before the Storm

We’re out of the hospital for a few more days, it’s our last true break before things really wind up. …

What I’m Reading Tonight

Today was a stressful day as the start of our transplant process. Duke’s team couldn’t have been better, but I …

The Work-up

This week will begin Zoe’s transition to the care of Duke Medical Center, specifically the Duke Pediatric Bone Marrow Transplant …