duke | evanz

It seems like the nature of treatment that we are never able to quite get clear of things before we …

Where to begin? So much has happened in the past couple of months since my last update. First, an apology …

What a year! Our life has been completely turned upside down by this disease this year, and I’m not sure …

These past few months we’ve found that it’s really too easy to lose sight of the reality of this disease …

We’ve now gone 30 days since Day +100, and things continue to slowly improve. Our last few visits have seen …

Today was Zoe’s 100 day post-transplant “work-up”, which means we shuffled through a long day at the Duke Children’s Hospital …

It’s been an incredibly long year. We’ve largely set aside our lives as we turned our focus to seeing our …

Today’s clinic visit brought interesting news, there was talk for the first time about a release date. Release at this …

As most of you know who have checked in with us at one time or another, Zoe has been on …

Zoe had a great day at clinic — or is having, I should say. We’re still here, getting the last …

Not much has changed for Zoe, which is exactly what we want. Her counts remain solid, her WBC is holding …

I was walking through the children’s clinic wing of the hospital a couple days ago with Maya on the way …

Things are settling out here as we work out our routines. Now that we’re out of the hospital and in …

Note: A bit of a cute picture round-up today, I had a few more inpatient pictures to get up before …

We’re out! What a day. Maya and I arrived at the hospital this morning around 10 to help pack up …

It’s hard to believe, but we expect to be leaving the hospital tomorrow. It’s been a very long and painful …

Another milestone this morning. Zoe’s counts all went up today for the first time without any cell growth medication or …

Still in the hospital, it’s looking more and more like we’ll be here ’til next week. Zoe continues to have …

I had a post written up covering the last couple days while we were waiting for results, but now that …

Counts are holding up still despite the cessation of the growth factor, her WBC was 7.3 today. Down from 11.1, …