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Home for Christmas

What a year! Our life has been completely turned upside down by this disease this year, and I’m not sure …

30 Days of Light

We’ve now gone 30 days since Day +100, and things continue to slowly improve. Our last few visits have seen …

Programming Notes

If you haven’t seen it yet, please check out the most recent update on Zoe — she’s had a big …

Day +100

It’s been an incredibly long year. We’ve largely set aside our lives as we turned our focus to seeing our …

Day +82: Talking About Release

Today’s clinic visit brought interesting news, there was talk for the first time about a release date. Release at this …

Day +68: Changes Afoot

Zoe had a great day at clinic — or is having, I should say. We’re still here, getting the last …

Day +65: Line Breach

We’re still waiting on the chimerism results. It’s a test that they like to discuss, and since results were not …

Day +??

I was walking through the children’s clinic wing of the hospital a couple days ago with Maya on the way …

Day +50: The Med Routine

Things are settling out here as we work out our routines. Now that we’re out of the hospital and in …

Day +47: Outpatient Daze

Note: A bit of a cute picture round-up today, I had a few more inpatient pictures to get up before …

Day +42: Packing Up

It’s hard to believe, but we expect to be leaving the hospital tomorrow. It’s been a very long and painful …

Day +37: All By Herself!

Another milestone this morning. Zoe’s counts all went up today for the first time without any cell growth medication or …

Day +34

Still in the hospital, it’s looking more and more like we’ll be here ’til next week. Zoe continues to have …

Day +30: Chimerism

I had a post written up covering the last couple days while we were waiting for results, but now that …

Day +28: 7.3

Counts are holding up still despite the cessation of the growth factor, her WBC was 7.3 today. Down from 11.1, …

Day +27: 11.1

Zoe’s WBC counts were at 11.1 today, which is significant for two reasons. One, she has white cells! Reason enough …

Day +25

Zoe’s WBC count hit 6.8 this morning, up 1.3 from yesterday. Just amazing. No ANC yet, we aren’t getting daily …