sct

Day +30: Chimerism

I had a post written up covering the last couple days while we were waiting for results, but now that …

Day 0: Transplant Day

Last night I spent a lot of time talking to Maya about today, trying to prepare her. We knew that …

Work-up Week is Over

Shew. Long week, but very satisfying in some ways because we now know everything about Zoe from head to toe. …

What I’m Reading Tonight

Today was a stressful day as the start of our transplant process. Duke’s team couldn’t have been better, but I …

The Transplant Decision

It’s decision time for Zoe. I’ve talked about this before, about our stress and uncertainty with the decision to transplant …

Checking In

After last week’s lower immune counts we had skipped the VP-16 dose for the week, so today Michelle is in …

Right in the Middle

So, where are we? First, a few updates. Zoe had a good day on Friday for her VP-16 dose. No …

FHL, or, Familial HLH

Now that I’ve attempted to lay out some basic information for understanding HLH, I’d like to take a look at …

HLH: A Simple Description

In order to properly discuss or write about some of the more complicated aspects of this disease, I feel I …