Day +30: Chimerism
I had a post written up covering the last couple days while we were waiting for results, but now that …
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Day 0: Transplant Day
Last night I spent a lot of time talking to Maya about today, trying to prepare her. We knew that …
Work-up Week is Over
Shew. Long week, but very satisfying in some ways because we now know everything about Zoe from head to toe. …
More on Reduced Intensity Conditioning, Cord Blood, and HLH
A lot more information today. Some days it feels like we’re drowning in medical data and decisions. Michelle and I …
Reduced Intensity Conditioning & HLH
We’ve decided to go forward with the Reduced Intensity Conditioning (RIC) for Zoe. As I mentioned yesterday, it came up …
What I’m Reading Tonight
Today was a stressful day as the start of our transplant process. Duke’s team couldn’t have been better, but I …
The Transplant Decision
It’s decision time for Zoe. I’ve talked about this before, about our stress and uncertainty with the decision to transplant …
Checking In
After last week’s lower immune counts we had skipped the VP-16 dose for the week, so today Michelle is in …
A Visit to Duke Part 2: Questions for a Transplant Doctor
On Friday we met with Dr. P, one of the Duke Medical Center docs who will be treating Zoe once …
A Visit to Duke Part 1: Surviving the Transplant
On Friday we traveled to Durham to visit Duke Medical Center and meet with part of the team there who …
Right in the Middle
So, where are we? First, a few updates. Zoe had a good day on Friday for her VP-16 dose. No …
FHL, or, Familial HLH
Now that I’ve attempted to lay out some basic information for understanding HLH, I’d like to take a look at …
HLH: A Simple Description
In order to properly discuss or write about some of the more complicated aspects of this disease, I feel I …
